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Been a while, and it’s all good news. My son continues to get better. He is now on a maintenance chemo program (less chemo meds). He has the ability to skip some if he wants to for most any reason, for example, he has company visiting, he needs a break, etc. The cancer is not gone (per the oncologist), and they are continuing the treatments and doing CT scans to make sure it stays that way. I’d say very good news. They don’t want to disturb or interfere with things where his cancer is/was located, so they aren’t planning on a surgery. We are going to see if we can see if we can get the ostomy bag reversed but no plans on trying to remove anything since they don’t have a measurable mass to remove. Thank you to all who are praying for him. Now we need to pray he can start moving back into a normal life. He has anxiety about all of it and talks about doing it, but hasn’t make the move forward yet. He has time. His leave ends sometime in March — but not much.

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Tomorrow is CT scan. Will get mychart info after the scan to read, but the Dr. appointment after that is not for another week and 1/2. Another chemo 2/4. Things moving along. He is adjusting to new meds (there are 3 of them) and about every 2-3 days he says he feels sick. Nothing serious, just doesn’t feel well at all.

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Doctor said we are on maintenance, several medicines have been changed and our chemo sessions are now much shorter. He also said we should look into 2nd. surgical opinion at this time to reverse the ostomy bag. While my son is anxious about getting this done, he is also not in a hurry. Basically he is wanting to see what if anything shows on the next CT scan (scheduled for next month), and finishing up theses last rounds of chemo. He is talking with a Life with Cancer counselor which I think is also helping. I have been trying to get him to write a list of things we need to do – like make sure his car even runs before we register it, but he is not the type who plans out things so even making the list is hard for him. I keep saying one small step at a time but he wants the result fast and easy. It’s not going to be fast or easy.

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Thank you prayer warriors! Today we weren’t supposed to see the Dr. at the infusion center, but we did. When he walked by, my son asked him when his next CT scan would be? He said soon. My son wanted to know because the last CT scan showed no measurable tumor. Dr. also mentioned my son was on “maintenance” — which meant to us that he wasn’t expecting the tumor to reoccur. Our medications today were much less than usual and one of them was totally eliminated. We did come home with the chemo machine and so that didn’t change, but we are feeling good about all of it. Now we are so curious to see if perhaps, there is still no measurable tumor. What a blessing this already is – from “you have 3 weeks”, to you might have your whole life ahead of you! We are winning this battle.

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